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Kidney Care reviews in Oklahoma City
came back, they said I did have lab work to do. A blood test and a urine test. Great – I had no urine anymore! I mentioned to the phlebotomist that blood was OK, although I was not fasting, but someone should have stopped me from the men’s room break for the urine test. The woman said that happens all the time. Odd.
I went in and met with the medical assistant, then sat and waited until around 4:15 (so much for an early appointment). Dr. was the kind of doctor who clearly doesn't like it when patients ask questions that are not easy to answer or perhaps challenge his knowledge. I quickly perceived that he and I did not click.
I told him I did not know why I was there. I already knew the genetic test results, knew what the diagnosis was, knew the rarity fo my condition, and understood that patients who have PKD1 are supposed to get kidney failure in their 30s, whereas I was 52 and had perfect-functioning kidneys, albeit with cysts on them. He said I was wrong. He then pulled out a document, opened to a page showing a bell curve chart from a study and showed me that the age when PKD1 patients get to end-stage renal failure is 58, not late 30s. He then told me that I "was on track." There's no other way to interpret that -- he meant that I was on track to die from kidney failure at 58. Such a cold-hearted, unsympathetic approach got me rather upset. I remembered that the Genetics Medicine clinic told me that most nephrologists have very little experience with genetics-based kidney diseases; it's mostly hypertension and diabetes-related kidney issues, and for what I have, they may never see that in their entire careers. So I asked him out him how many of the patients in his quoted study had the very rare genetic anomaly (a missing , not a mutation) that I do. He literally just stared at me, smirked, and said "It doesn't matter." Not a good answer. I then asked him how many patients in his career had he seen that were PKD1 patients with a deleted . Again, I got a smirk and "It doesn't matter". That's what a doctor says when they are afraid of being discovered that they don't know the answer.
This was without a doubt the worst, most unprofessional doctor visit I've had in my life. It was a complete waste of my time, as subsequent developments have revealed he did not know what he was talking about, yet he smugly gave me such terrible news with all certainty. All because I had the temerity to ask him questions and advocate for my own healthcare. I will not return to this doctor, nor would I ever advise anyone who is intelligent and asks questions of their healthcare providers to do so. You will not be well-received by this doctor. His ego evidently will not stand for that.
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